Parenting with a Disability or Chronic Illness: An Essential Bibliography

The Project's mission: "The Disabled Parenting Project (DPP), which is part of the National Research Center for Parents with Disabilities, is an online space for sharing experiences, advice, and conversations among disabled parents as well as those considering parenthood. The DPP also serves as an information clearinghouse and interactive space for discussion and connection. The DPP hopes to inform social policy concerning this underserved population through the development of scholarly research, fact sheets, and training resources, as created by and for the community, and will set the stage for additional research and social action to address the important issues of discrimination and disparities."

NRCPD's mission: "The National Research Center for Parents with Disabilities is a collaborative research and advocacy project that aims to support parents with disabilities. ...We combine research expertise and first-hand experience to create a comprehensive resource for a variety of stakeholders, including parents, family members, clinicians, policymakers and disabled parents. The Center is guided by an advisory board composed of parents with disabilities or family members of parents with disabilities to ensure that our work places their needs at the forefront."

This site includes a report from NCD as well as a toolkit of resources for disabled parents.

From the site: "The National Federation of the Blind knows that blind parents are fully capable and have been successfully raising children for generations. ...Through these resources, we strive to build a strong network for blind parents, grandparents, guardians, and caregivers where questions can be answered, experiences can be shared, and alternative techniques can be learned."

The TLG mission is: “To provide and encourage respectful and empowering services—guided by personal disability experience and disability culture— for families that have children, parents, or grandparents with disability or medical issues.”

The Arc's mission: "The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes."